EyesWise 100 Voices: Georgie’s patient experience story (1/2)

>>Georgie Bullen: My name is Georgie Bullen,
I’m from Cambridge and I have optic nerve drusen with neovascularisation and scarring.
It’s a form of wet AMD. As a Child – Hospital Experience I think it’s quite funny growing up because me and my partner are both visually impaired
and we’ve kind of shared horror stories in a way, of when we were kids, being in a
hospital. You know, hating drops being put in your eyes and things like that. My main
memory was spending, like, every time I was going to hospital I wad prepared for it to
be a long trip, it would take up the whole day and you’d be surprised if you were seen
in the first two hours of arriving. So to be honest, most of the time my parents would
go there with all sorts of different things to entertain me, but I’d still get bored
and a bit ratty. But in the end the biggest thing was that I was consistently bribed with
Pick’n’Mix sweets if I was good when my drops were put in my eyes….which means now
my partner has to bribe me with Pick’n’Mix. On the whole I have had a fantastic ophthalmologist
and I have built up a lot of trust with her and a lot of respect for her. Only recently
did I finally have to change doctors because she said I can’t stay with her because she
is meant to be a paediatric ophthalmologist. So that was a bit difficult leaving her because
I have built up a really good relationship. Transition – Child to Adult Experience I mean, one of the things I have noticed is that moving from being a child who is seen
to being and adult who is seen the care I get is quite different, in that I do think
there is more urgency, rightfully so, you know children, if they have got potentially
a degenerative condition, you would want to prioritise them, if you have to prioritise
people. But I would like, in the future to see a kind of consistency, because it doesn’t
matter what age you are if there is a way for you to keep sight, or if you are concerned
about losing sight you do want to feel that you are getting the best possible care that
you can. You know I do understand that the NHS is under
a huge amount of pressure and there are so many people who want to be seen, and I know
that the kind of issues with eye conditions are on the rise – but we have to reflect
that in the care, so I would like to see that consistency across all age ranges. Patient Engagement – Micro-volunteering So I have actually fundraised for my local
eye clinic in the past, and even as a child was part of a hospital board because the were
considering building a children’s hospital kind of campus at Addenbrookes and that’s
something I have always been really engaged with.
I think that ways to engage people now, you know I’m really busy nowadays, I work full
time, I’m also an athlete, so ways that I would be able to engage and support with
the clinic now would be kind of bite-sized things. So if it was, you know, a survey that
needs completing or just little kind of ways, micro-volunteering, that would be a much easier
way for me to still be involved because obviously you know, people working full time, busy lives,
it’s hard to be as engaged as you would like to be, and try and support the NHS and
local services that support you. But if there were, kind of, bite-sized ways to do that,
I, that would be something that would engage me.

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